I had plans for this day.
A big part of which included play.
The roads were bad, what a drive!
So relieved to arrive and return alive
for the rest of today home is where I'll stay.
Showing posts with label musings. Show all posts
Showing posts with label musings. Show all posts
Sunday, December 13, 2015
Saturday, December 12, 2015
randomness
Jazz. Smooth. Sultry. Sad. Soul.
Write not to record as much to fi
Acoustic guitar. Judy collins. Carol king. Altusic.
Be open to an experience it try. Say yes. Say ok. No is
the end. Ends suck. Avoid ends unless you are making the end
intentional. But do not hurt youself. It is strong to recognize you need
help and it takes great strengt to ask. But ask and be appreciative.
reada boook that someone recommends or catches you eye.
50 pages. Again at a different place in your life. The right time is powerful and worth the effort
Books give you friends to visit over and over from any place or time. Visit with them often.
Over chicken soup and rice. Or with a polary bear. Pop on top or in a box.
Hayden Bethoveen pastoral. St. Martin in the fields.
Write not so much to keep a record. More to help you sit and reflect and focus on your day life or experience
Love movies.
Stories of friends and pulling together for the cause.
Over coming what needs to be reduced. Obasticals are
opportunities for growth. Learn from them. Push yourself. Have a friend
with you. Safety always. As in everything in moderation. Somewhere in
time. Watch it
Spend time. Invest in you and enjoy a good thing ever time you can.
Spend time. Invest in you and enjoy a good thing ever time you can.
Cotton candy at the fair. Pop corn late in the day
With root beer or dr pepper or Fresca and a good book movie or friend.
With root beer or dr pepper or Fresca and a good book movie or friend.
Find your chuck. A person to love you. Keep you safe as
promised. I always felt best in his embrace. Arms or eyes. With him I
could be vunerably. He was proud of my whims and warped sense of do do
do. And let me and loved me. In spite of the times it hurt me. thid isyour passion others may not get it but you do. know theperson the friends thefsmily the history it is a giftto you hold it as precious respent and honor one another's deep self. if you ever feel fear. get out. being smart and safe trumps in blind and stupid
Regret nothing. Sad that I couldn't always protect those I
loved from the pain and trials I opened them too. Hope one day you
appreciate that I always thought that I made the better decision when I
had a choice. Sometimes there are no good choices and you have to make
the hopeful one. Let it rest and rely on faith. The power of prayer and
a good back up line. You have that. Love carries on. My friends and
our family will be there for you. This is comfort. I've done all I
can do for now. I long for and plan for contuing to do so. As long as I
can
Read read learn feel love be brave be gold. See the small
beauty see the big picture. Keep your eyes wide open. Don't turn from
bad. Seek solutions. Look for the good make the good you can do good be
good love one another
Smile dream be happy shed tears of joy. Sad tears bring snot. No one looks good in snot. Stop it . Please.
list
Donate body
Cremation
Cremation
scatter where You will visit or I will a value
No need to prolong anything. You don't need to worry. My body is done when it is done. Waiting won't change that. We made it to here and beat the odds.how many times over unlike compound savings each odd is alone
each measures that probability if we are out we are out. it doesn't make sense to het worke up on a better outcome focus on all we accomplishe celebrate that we our best AND got farther than often seemed possible
Stupid growths did not know that they killed themselves in the process of invading me.
The car slam was I think a step in shaking more g b m seeds all around in that we were defeated from the get go. Beyond our control. Hate that it happened but can't find the best way to hate the fact that it happened.
Be as careful as you can be but in the end you have to live
for life to be good. Look for the good. Make the happy happen. Be
relaxed about stuff.
Like corm boil it is over on Sunday night just get
through it. Everyone is doing what they can to follow the plan. Hot
and tired as they are .if they are dancing their own tune. Address it at
the next meeting. The event works best when all work the group recognizes that each part contribute to the over whole . Every one comes to CB with their own fun in mind.respect this. it works eventually they will value it in a tangible way taht makes more sense to you. Good will who they share the message with that is WOM advertising and worth every effort at the price of doing a good event
My blog Is intended to be a help. Please update from my draft emails. Maybe alison moore can help here. They are my thoughts and reflections on the life I enjoyed so much. Thank you fof sharing it with me. You surpassed yourself. Keep it up for me.please. our families need you whole my memory relies on you. Coninue to keep me safe. Love me.
the to do list will never be dpne I continue to have a plan
Done and giving up are not part of the story. Not until my story is too much to be good for you .
Done and giving up are not part of the story. Not until my story is too much to be good for you .
It is also our story and our battle.
You are
a gallant hero. My prince. My rock. Faithful companion. Better than
any lead in any book or movie I ever saw. My own towel.Lover man .
Wednesday, December 09, 2015
Dec 2015 where we are now
Began Chemo and Radiation November 17 30 day cycle with Temodar for 42 times covering the non- radiation days as well.
In treatment this deep due to New Growth visible in 2 MRI's Sept and Larger in October. The new guy is blood hungry and hangin over my Brain stem. Of course I am a deviant from the norm. Often rGBM is near the original site. Reaching out from remaining tissue. Me? PNT growth in the cerebellum as I mentioned brain stem. removing any surgicaloptionan any access is a greater risk for damage than fix.
Thankfully the original site seen with growth had cleared on Avastin which was a difficult journey. bI Weekly IV treatments. 6 SCHEDULED in aug and Sept GOT THROUGH 5 then moved to the new plan.
Adding to the excitement Thanksgiving family stuff; making sense of it sorting things; consolidating life; journalling as much as possible.
The more dependent on others I become the more acutely I feel loss of self.My world is shrinking in so many ways. Who will get me water? Food? clothes? to t6he table? They don't even get how I like my straw or that I like certain spoons or forks. even to have papertowels handy.
I understand expressions on faces from the past ALL THE PEOPLE I ENCOURAGED to just try. Sometimes the try is all used up. strog bravve tough old birds do carry on. In my darkest hour to date I came to accept that others join the freny because they want me around as much as want to stay around WE BATTLE togther. THIS IS OUR fight.
In treatment this deep due to New Growth visible in 2 MRI's Sept and Larger in October. The new guy is blood hungry and hangin over my Brain stem. Of course I am a deviant from the norm. Often rGBM is near the original site. Reaching out from remaining tissue. Me? PNT growth in the cerebellum as I mentioned brain stem. removing any surgicaloptionan any access is a greater risk for damage than fix.
Thankfully the original site seen with growth had cleared on Avastin which was a difficult journey. bI Weekly IV treatments. 6 SCHEDULED in aug and Sept GOT THROUGH 5 then moved to the new plan.
Adding to the excitement Thanksgiving family stuff; making sense of it sorting things; consolidating life; journalling as much as possible.
The more dependent on others I become the more acutely I feel loss of self.My world is shrinking in so many ways. Who will get me water? Food? clothes? to t6he table? They don't even get how I like my straw or that I like certain spoons or forks. even to have papertowels handy.
I understand expressions on faces from the past ALL THE PEOPLE I ENCOURAGED to just try. Sometimes the try is all used up. strog bravve tough old birds do carry on. In my darkest hour to date I came to accept that others join the freny because they want me around as much as want to stay around WE BATTLE togther. THIS IS OUR fight.
Sunday, January 11, 2015
Loss
Grief
Sorrow
Empty
I should have....
Why didn't I...
I want to tell you...
I think into the void that was once you.
My anchor. My standard bearer. You.
Braver
Stronger
A story and a book.
Sorrow
Empty
I should have....
Why didn't I...
I want to tell you...
I think into the void that was once you.
My anchor. My standard bearer. You.
Braver
Stronger
A story and a book.
Saturday, July 26, 2014
Who am I
Who am I is an question for the ages.
Who I am has been defined by the company I keep
Daughter
Granddaughter
Niece
Friend
Sister
Cousin
Volunteer
CoWorker
Mentee
Mentor
Aunt
Wife
Daughter in Law
Sister in Law
Who I am has been defined by the company I keep
Daughter
Granddaughter
Niece
Friend
Sister
Cousin
Volunteer
CoWorker
Mentee
Mentor
Aunt
Wife
Daughter in Law
Sister in Law
Monday, June 02, 2014
Noises
Noises
voices from now
memories from the past
reminders and recriminations
images and imagination filled visions
to sort the truth from fancy
the lies from fact
the solace that comes from finding a sound
the sound that matches my beat
the ebb and flow of this moment
my here and now
my hear and know
the simple change of a sound
a sight
a moment in time
creating new noise
memories
priceless
or painful
or both at the same time
my head is filled with noise
my mind struggles to make sense of the cacophony
the mess of who I am
what I've been and all I've experienced
real or imagined
I continue to become who I will be.
- BH 3/29/14
March 29, 2014 at 1:12pm from my facebook page.
Thursday, September 29, 2005
What I Believe
I believe that the ability to read is a wondrous thing. Making the most of this ability has application to all aspects of your life. Reading can be done nearly everywhere at anytime with a minimum of requirements. Individual preferences would fill in additional levels of comfort past illumination and reading matter.
I believe that reading and playing are more important than cleaning under the bed. Additionally, I believe that everyone has rights and responsibilities. It is my opinion that a successful person enjoys the proper balance between the two.
According to my Mom, I have visited libraries since before I was born. I have worked in a library of some form or another since 1975 and am committeed to doing what I love, and loving what I do! My natural tendancy is to collect and organize. I have surrounded myself with family, friends, books, pets, garden plants and kids.
Words to Live By:
...Always be curious, devoted, enthusiastic, factual, generous, humane, impassioned, jocund, kindhearted ...
I believe that reading and playing are more important than cleaning under the bed. Additionally, I believe that everyone has rights and responsibilities. It is my opinion that a successful person enjoys the proper balance between the two.
According to my Mom, I have visited libraries since before I was born. I have worked in a library of some form or another since 1975 and am committeed to doing what I love, and loving what I do! My natural tendancy is to collect and organize. I have surrounded myself with family, friends, books, pets, garden plants and kids.
Words to Live By:
...Always be curious, devoted, enthusiastic, factual, generous, humane, impassioned, jocund, kindhearted ...
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